Selling Health Data: De-Identification, Privacy, and Speech

Author(s): 

Bonnie Kaplan

ISPS ID: 
ISPS14-024
Full citation: 
Bonnie Kaplan (2014), Selling Health Data: De-Identification, Privacy, and Speech, ISPS Working Paper (Bioethics), ISPS14-024.
Abstract: 
Two court cases that involve selling prescription data for pharmaceutical marketing affect biomedical informatics, patient and clinician privacy, and regulation. Sorrell v. IMS Health, Inc. et al. in the US and R v. Department of Health, Ex Parte Source Informatics Ltd in the UK concern privacy and health data protection, data deidentification and re-identification, drug detailing (marketing), commercial benefit from required disclosure of personal information, clinician privacy and duty of confidentiality, beneficial and unsavory uses of health data, regulating health technologies, and considering data as speech. Individuals should, at the very least, be aware of how data about them is collected and used. Taking account of how that data is used is needed so societal norms and law evolve ethically as new technologies affect health data privacy. and protection.
Attachments: 
https://isps.yale.edu/sites/default/files/publication/2014/10/isps14-024.pdf
Publication date: 
2014
Publication type: 
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